PCD Has Nothing on Me!
by
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1 Mommy, Why Me?
One day, I found out that I have a condition known as PCD. It means I can’t breathe well.
I asked my mom, “Mommy why me? Why do I have this problem?”
She said, “You don’t have a problem; you are a special one God has chosen.”
I said, “So, God chose me to be sick?”
She said, “Think of it this way: everyone has something to deal with in life. God gives everyone his or her cross to carry. PCD is your cross to bear.
But in doing so, you can inspire, motivate and reach many kids going through their own medical challenges. Those kids feel and have the same question you have: “Why me?”
Anyway, when she said that to me, I thought about it. I wish there was a book I could read written by a kid, who like me has a chronic illness and knows exactly how I feel. I never saw it that way before and right there I knew what I had to do. “Wow” I will write the book that I wish I had.
So, basically that’s what led me to want to write this book. I hope you find your “Wow!” moment just like I did!
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About the Book
Getting sick when you’re a kid is no fun. You can’t always do what other kids can do, or go to school like they do. Sometimes it means spending lots of time in the hospital. She sees the nurses in the hospital almost more than her friends. It can be scary, frustrating and boring. Chloe R Fernandez knows this all too well! When she was just six years old, she was diagnosed with chronic obstructive lung disease due to underlying Primary Ciliary Dyskinesia (PCD). PCD is a genetic disorder. A body with PCD can’t clear its own airway secretions. She’s faced many scary moments when she couldn’t draw a breath and has endured painful and embarrassing treatments. But throughout it all, Chloe has remained positive and upbeat. During her hospitalizations Chloe befriends the nurses, doctors, staff and acts as the “Resident” doctor on call. One of her strongest beliefs is that “life is what you make it,” and her most avid advice is “stay faithful always.” Children of all ages, grappling with any kind of illness or condition, will find both an understanding and comfortable friend in Chloe.
About the Author
Chloe R was diagnosed with PCD at the age of six. In all she does, she hopes to highlight that kids with chronic illnesses are not defined by their challenges. Chloe loves keeping journals of her daily life. Spending time with her family, friends, and dog, Abby, make her very happy.